June 13, 2005
Avalon's surgery
This morning, at 8 am is Avalon's surgery to re-implant her port.  Surgery itself
should be less than an hour - with an hour in recovery.  If all goes well, we should be
winging our way home by 11:00 am.  

I'll be very happy if I can report to you this afternoon - that the worst part of today
was getting up at 4:30 - to be in the surgery center by 6 am.  

Please keep her in your thoughts...

We love ALL of you!
Alicia, Nick, Aurora, Ambrosia, and
Avalon.
June 13, 2005
Avalon is at home!
Ding dong the PICC is gone!
Which old PICC?
The hated PICC.

Ding dong the wicked PICC is gone....

Avalon's surgery to reimplant her subcutaneous infusion port (SIP) went well.  The
surgeon chose to do the implant incision more central in her chest - and low this time.
 The exact quote was:

"I put the incision low - where a bra line will be.  It won't be so noticeable...she already
has other scars to deal with."

I happen to think that was remarkably thoughtful since he was working on a two year
old.  Again, someone at Children's has suprised me with their kindness.  I keep
thinking its not possible to surprise me any more.  Lesson learned.

Avalon won't be able to get the site wet for a week...but at least there is a bath in her
near future.  Wahoo!  for that .

Avalon also came home with the port accessed.  They need to be accessed for the
first several days after implantation - basically to properly scar into place.  Since she
got the last port during diagnosis stay, access wasn't a problem.  This time, she
came home accessed - and we will just have to Heparinize her every day like we had
been doing with the PICC line.  No biggie.  Avalon has one of her awful super chemo
days on Thursday...they will probably be able to de-access her then.  

There were a few snags today.  First of all, Avalon woke up with a runny nose with
icky green boogies.  Not a great sign - let's hope it doesn't get any worse than that.  
Second, she did spike a fever after surgery.  However, she also flushed greatly from
the anesthesia - so only time will tell if the fever was from the flushing or not.  The
moral of the story is that I'll be taking her temperature constantly today - just to make
sure.  Give her a few hours, and she'll be ready to take me out back of the woodshed
if I come near her with a Temp-a-dot.  As per usual...I'll keep you posted!

Currently, my little patient is sitting quietly on the family room floor, eating fruit loops,
playing with My Pretty Ponies, and intermittently hugging the stuffing out of Ambrosia.
 She's dopey, hungry, and not exactly operating in our plane of existence...but she's
happy.

Thank you one and all for once again helping keep her safe.  We appreciate each
thought and prayer.  

Love!
Alicia, Nick, Aurora, Ambrosia, and
Avalon
Next
Back
Our Journey:
Avalon's Army of Angels